Special needs Special people

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Comment by Malyndra Crow on December 13, 2012 at 12:44am

It's nice to see an Autie group on here. I'm what they refer to as "high functioning" tho I hate that term because it sounds elitist, like the spectrum is some kind of caste system. :p  Anyway, I'm totally into science and magick both, I can explain quantum gravity theories til my face turns blue, but I can't read analog clocks and have difficulty tying my shoelaces. And I'm 36! Oi!

Comment by Mama C-The Urban Rootworker on April 22, 2010 at 4:34am

In the same 7th Session Special Legislature meeting held in AZ that cut funding again for DDD- a bill that was to tax golf carts was not approved. So, basically I hope that all nice rich fat cats zooming a around in their tax free golf carts tip over. Money talks- middle - low income families with special needs can't grease the palms of politicians.

Comment by randi on April 21, 2010 at 5:36am

seriously every time i turn around its our children being attacked first, our fricken kids are our future and u know dam well that thier bills are being paid and thier children are in private schools that cost more than my darn house, sorry it may sound crass, and ok we need to make budget cuts because the people who are being PAID to keep on top of this stuff let it get this bad but why the hell are the first ones to suffer always are kids???

Comment by Mama C-The Urban Rootworker on April 19, 2010 at 1:54pm

Arizona just cut funding for thousands of children! It is an outrage!

Comment by Mama C-The Urban Rootworker on April 18, 2010 at 7:19pm

New research released Friday. Studies are showing the ASD children are processing language on an average of 10 words behind in a conversation. Thesis is that this is what is causing auditory and receptive language processing to not work quite right. It is a HUGE discovering because it means if they can find out why and how to remedy it-- they may have a possible cure!!!! THIS IS HUGE and was highlighted on ABC Saturday News report.

Comment by Mama C-The Urban Rootworker on April 16, 2010 at 2:23pm

I am glad I could be of help. I will PM you my agency website we have some vidoes up about play therapy, ABA Therapy and a Nanny 911 episode with a family with an autistic child and how the family dynamic can either hurt or help.

Comment by randi on April 16, 2010 at 2:16pm

You are a very kind person thank you very much. those are some of the first encouranging words iv heard in a long time!

Comment by Mama C-The Urban Rootworker on April 16, 2010 at 1:37pm

You have to advocate hard. DDD is so over burdened that they can't. If your son has a IEP that is enough to get a referral for DDD. Just keep trying until you get a Case Manager who will, send you to a doctor for assessment based on his IEP. You have be the noise maker, bug them until they do it.

The school can't an won't diagnose, but they assess and you can use their documentation to get what you need. It just takes one good postive connection and your smooth sailing. Sounds like you are on the right track.

Your pediatrician should have given you a referral to a Developmental Specialist or Magellan. I am glad you finally have someone may get you what you need. I know it is so frustrating when they are under 7, so much harder to get a diagnosis.

If he is diagnosed Asperger's, which it sounds like he might possible be the gray area between High Functioning Autism and Asperger's is so thin, and if you get a Aspie diagnosis, you will not qualify for services with DDD, the do not consider Aspie one of their 4 diagnosis. Which is a shame, because it is the High-Moderate functioning individuals who have the greatest chance at a productive life with the proper therapies.

Keep moving forward, keep being your child's voice and don't believe everything someone tells you, with DDD get more than one person to give you information then compare, the truth lies in between all the varying answers.

Comment by randi on April 16, 2010 at 1:13pm

iv got him in a pre preschool thru the school district but they cant diagnose him, i got on a list with a doc who when i talked to him said he'd give me a diagnosis for between 5 and 7 hundred at a hundred an hour which is almost a third of wat the hospital said and DDD told me that they wont do ANYthing untill a diagnosis is made. so we are finaly on the right track its just takin forever lol. he said he could probly get me in middle of next month and gave me his cell.
He does have some pretty severe signs so i think if i could actualy get him seen by a professional that would not be a prob the ped doc told me she cant diagnose because its not her thing but that im most likly lookin at HFA because he is very intelligant they call it splits in his IEP, and his teacher said he's top in the class and has the most improvement. Its mostly in his manerisms and speech like a link is missing between communication and understanding. he went from 3 months ago not speaking at all to chopy small sentances. he pases like crazy and can repeate every commercial to u from the moment it comes on before they even say the name.
Im sorry for rambling on and on its just so nice to finaly talk about it to someone who might understand seeing as how my husband is about 2 or 3 steps behind me and not taking it all to well.
Thanx and Blessed Be

Comment by Mama C-The Urban Rootworker on April 16, 2010 at 11:41am

Have you applied for DDD? Do you have a Developmental Pediatrician? What school district are you in?

It is your right to take your son to the school district you live in, even if he is preschool age, and they HAVE to assess him, because your tax dollars support it. The Doc will try to put responsibility on the school the school will tell you to see your doctor- just have to be the squeaky wheel and DEMAND what your entitled too.

If you have DDD I can put you on a list for a free assessment with my agency, however it will be a about 2 months wait. If you have not applied for Service through the State, I can help you do that. Once you apply for service, they will send you to a doctor for assessment, however if your child is under 7 it is difficult to get anyone to help. This is because, they do not want to label the child, as development can rapidly change the first years. It is more closer to around 2nd grade you get a diagnosis UNLESS the child has severe unmistakable challenges.

Let me know if you have applied for DDD or need a referral to DDD, I can get you one.

Blessing to you and yours,
Mama C

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