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Recently I have diagnosed and living with trigeminal neurolgia. It is a disease that is also known and the "suicide disease" and the "worst pain known to mankind". this disease affects the facial nerves from a blood vessel that is pulsating against it. Not that it cannot be repaired and stopped but both the nerve and the blood vessel are located in my brain stem. This causes me to have episodes of spasms and pain that opides and normal over the counter drugs do not take care of. My best description of the pain is and electrified hot knife being pushed slowly in a twisting motion into one side of your face or the other. Sometimes pin pointing a specific spot for hours. This makes a broken bone, major other pains I have had seem like a walk in the park.

I usually have to use everything I know of to keep calm and keep from screaming during an episode, so soft music, meditation, aroma therapy ect ect comes in handy. All I can do is get through one episode at a time and continue to try and live my life and help others to the best of my abilities.

Views: 32

Comment by EarthWolf on May 10, 2014 at 6:20am

Oh My....

Comment by Hemlock Pepperwitch on May 10, 2014 at 6:31am

I can't say i know how you feel. But I will frequently send you some extra energy when you need it.

Comment by James Macknight on May 10, 2014 at 6:34am

I wish there was something I could do to help.

Comment by Kixs on May 11, 2014 at 8:47am

You need to see a different neurologist. My sister suffered as you do for years until she seen a neurologist in St. Louis that was able to kill the nerve hers was also in the brain stem. There were side affects, her left eye now droops a bit and so does the left corner of mouth, and she has reduced feeling on that side of her face but it's not affected her speech or site and if you didn't know her before you would never notice the drooping, but she is completely out of pain finally.

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